I need to blow off steam and I am sorry blog with my housemates away I am going to take it out on you.
So today, I visited the hospital with my Nan who is very dear to me. We were seeing a neurology specialist about a rare brain tumour called a Cavernous Angioma which we had been vaguely told she has.
As we sat down to see the neurology specialist and very quickly we were told that Queen Elizabeth Hospital had lost her MRI and CT scan which originally alerted medical staff to the tumour. So this means my frail Nan may have to come from her care home in Dartford to Holborn in London to have another scan.
My Nan as we suspected previously and had pretty much confirmed to us today has some form of dementia. Now this is where things get really frustrating. Since losing the ability to look after herself and spending a spell in hospital last year, I have been constantly trying to get her diagnosed with dementia by the local memory clinic in Dartford at Darent Valley. But they refuse to see her citing her Cavernous Angioma and saying is causing her hallunciations and confusion.
The neurology surgeon today was able to tell us that unless the tumour is huge, it would be incredibly rare for it alone to cause the confusion. And that in all likeliness dementia is the key factor contributing her illness.
When I was pressing the Doctor to ensure she can now finally see the dementia specialist and get the therapy and medication she needs. He said he can’t necessarily make that happen as different trusts have different approaches to this. I asked him to include this suggestion in his letter which seemed like the only thing I could do.
I just feel so frustrated all we want is clear communication and diagnosis about her conditions. But 8 months later we still haven’t got there.
I feel sorry for my Nan she is a kind wonderful person and although she doesn’t say the same things she used to I still love her very much and she deserves respect and the best care the NHS can provide.
I still believe the NHS is an amazing institution full of hard working talented people. But I feel like because my Nan is in a care home and doesn’t fall into a pre defined box the health service isn’t doing enough for her.
Sorry blog and the NHS I do still love you and respect the work you do. But can you please just try and be a little less rubbish next time we meet.